Joint Hypermobility Handbook: A Guide for the Issues & Management of Ehlers-Danlos Syndrome Hypermobility Type and the Hypermobility Syndrome

This book has been extremely helpful. In fact, my daughter was referred to Dr. Tinkle in January. I wish my daughter would have been referred to him sooner. It was the most informative, insightful, and validating appointment that my daughter has had. We literally got into the car afterwards and she broke down because she finally felt completely understood. For that, I am so thankful to him. I would love to see another book from Dr. Tinkle in the future! I hope he knows the good work he is doing for his patients.

Wow ~ what can you say about Dr. Brad Tinkle that hasn't already been said here. Well I'll share a bit. I purchased his first book right in the middle of a terribly frightening time in my life ~ experiencing the new onset of significant pain in nearly every joint in my body in my 5th decade of life...postoperatively. Post-operatively in a new way - two artificial knees - and in an old way - 3 year old hips. Burning my way through that book ~ had the light go on in a huge, huge way ... & I began my quest for diagnosis of some type of connective tissue disorder.The diagnosis of Hypermobility Syndrome was forth-coming & Dr. Tinkle's book shed so much light I actually would fall asleep at night with the book right by my side as I would read & reread to learn. Through the book I began to gain in small steps some appropriate medical care. Granted I drove everywhere to get it ~ and even endured the age-old, "get counseling ~ it can help fatigue" - while trying to ignore side-long glances. Yet I persevered because I KNEW Dr. Brad KNEW what he was talking about. He was my light at the end of the tunnel. I gave the book to my doctors and happily some took it most willingly (they chuckled and thanked me for not highlighting it all up with, "see? that's me!" "see again? this is me!" - as I admitted I was tempted to do! Next I discovered this newest book was published & I bought two copies....one for myself....and the other for 'who knows who' as I am relocating and need to begin again the process of building my team of clinicians to aide me in dealing with Hypermobility Syndrome.I wondered how in the world any book could improve on the first.. I no longer wonder! This book again spells out in decided detail all of the reassurance you the reader seek ~ to be validated by a highly esteemed professional - Dr. Tinkle - in your experience as an EDS-HM or Hypermobility Syndrome patient. The book goes in depth to a greater degree with some of the pertinent clinical findings a clinician (or even patient) can find on exam and in diagnostic testing and patient history. It then discusses further some possible road maps for the patient/caregiver/doctor team to navigate for better outcomes in dealing with the varied difficult (albeit common) issues such as chronic pain & disability. Additionally the book traverses the reality of symptoms as they impact all the various age groups in life with EDS-HM/Hypermobility Syndrome. It becomes easy to see how early diagnosis can directly impact lives for the better -- maintaining wellness to the greatest extent possible armed with knowledge - is so much better than having four artificial joints beginning in your forties in utter ignorance.Another service that is not to be minimized is Dr. Tinkle's expressed opinion on Hypermobility Syndrome being of the same animal perhaps as EDS-HM. Too often Hypermobility Syndrome or the dreaded 'Benign Joint Hypermobility Syndrome' diagnosis is met with random disbelief, accusation, or frank, "So What". It's never comfortable to be dismissed ~ most especially when in pain and striving to attain the help and treatment you deserve to live your best possible life. Only in sharing the beginning words of "I have Ehlers-Danlos Syndrome....." would any medical practitioner begin to pay attention ~ sifting through what they read or recalled back in college or medical school. This was good news as I then would launch into my notion of having a 'variant' of it perhaps - Hypermobility Syndrome and offer Dr. Tinkle's book to them for further reading & expert knowledge.I began my process of achieving better wellness on the foundation of what Dr. Tinkle has made available to everyone in the writing of this newest book and his first. I simply and humbly wish to thank him for pioneering in this fashion...I cringe to think where I'd be today if it weren't for this helpful writing and encourage you to read either one, or better - both. For anyone who may have EDS-HM or Hypermobility Syndrome and feel you need a 'voice' as you self-advocate ~ I sense Dr. Tinkle is truly present for you and with you through these pages.

So this book was recommended to me by the physician who diagnosed me with H-EDS. It is good and there are some parts I think are worth reading however much of it is readily available online and the science has evolved some since the book was published many years ago now so that is something to take into account. I should also mention the author is top of the field in this and is on social media and it is worth following him and his work if you have H-EDS. I do still believe this is a good addition to those trying to understand connective tissue and joint hypermobility. I would also consider ordering Disjointed along with this if you or a loved one has been diagnosed with H-EDS.

This book is a valuable and comprehensive resource for those affected by the hypermobility form of Ehlers-Danlos Syndrome. Dr. Brad Tinkle is one of very few experts on EDS, and his depth and breadth of knowledge is evident. Information from peer-reviewed studies is complemented by observations gleaned from years of clinical practice. Numerous contributors representing a wide variety of fields add their expertise as well.The language in the Joint Hypermobility Handbook is straightforward, making this book accessible for patients and their families. While it is written for a lay audience, I believe that many healthcare providers may also find it to be a useful introduction to H-EDS, since so few of them have encountered it (and its numerous complications) in practice. I have lent it to several members of my treatment team and have received nothing but positive feedback.If you are a proactive patient who has lived with H-EDS for a while, you may already be familiar with much of this book's content (I was). However, I still think it's a useful resource to have, just because it's so accessible, comprehensive, and well-organized.In fact, one of my favorite qualities of this book is the organization. Each brief chapter deals with one topic (or a few closely related topics), so you don't have to read it sequentially. Curious about the genetics of EDS? Read chapter 3. Trying to decide if you should see a chiropractor? Skip to chapter 26. Suffering from POTS (a common co-morbid condition)? Go to Chapter 31. Struggling to perform the activities of daily living? Chapter 56 is full of helpful hints.While the content is superb, the layout of the pages could be better. In particular, the inside margins are narrower than normal, making it tricky to read text near the spine. Like many EDSers, I have trouble with my hands, so it can be painful to force the book open far enough to see everything on the page. I hope that this is corrected in future editions!

This book is great for learning more about hypermobility syndrome, beyond the obvious flexibility aspect. It's given me a lot of insight into various issues that I didn't really even know we're issues, as well as a possible explanation for my decade-long chronic headache, which I can now discuss with my GP. I feel this is important, because all doctors can't be experts in every obscure disorder, so it's important to know your own body in order to meet them half way. I feel like I am better able to identify if something is abnormal now, rather than "what do you mean that's a weird angle for my shoulder to be at?" or "you mean you've never felt like your skull just doesn't sit right on your spine?"I was initially worried that this would be a tedious read, but the format turned out to be very easy to get through in just a few hours. The language is accessible without being condescending, and the entire book is thoroughly referenced at the end of each section.A really great source for anyone with EDS/hypermobility!

This book is so helpful. I've read it cover to cover, and I'm always referring back to it when something new hurts for me or a friend. It's also a good way for someone who doesn't suffer to understand the Bendy world further. I highly recommend this book it really helped me.

A good book and very informative. Good for people who have just been diagnosed.One thing to point out: the book is American so some things that are written about benefits and entitlement to funding etc do not apply to us in the UK

The first comprehensive & comprehensible book on these little known or understood genetic connective tissue disorders.Invaluable to Hypermobile/EhlersDanlos people and any & all physios & complementary practitioners who work with them.

Fantastic book, it has really helped me understand my condition! very well written and easy to understand! would defo recommend this book to any one suffering with Elhers Danlos or their family and friends.